Lung Cancer Community Forum
We would like to hear your feedback on what you would like the forum to include, so please email through your suggestions to firstname.lastname@example.org by November 15 2019.
Agenda and speakers coming soon.
Australian Lung Cancer Conference (ALCC)
The Australian Lung Cancer Conference (ALCC) is Australia’s only conference dedicated to lung cancer. It showcases the latest research on treatment, care, support and advocacy from across Australia and around the world.
The overarching theme for this conference is ‘A Time of Hope in Lung Cancer’. The three main streams of ALCC 2020 reflect the Making Lung Cancer A Fair Fight: A Blueprint for Reform report and include: ‘Quality in Diagnostics and Care’, ‘Hope & Equity’ and ‘Living with Thoracic Cancer and Beyond’.
A committee has been formed to organise both events with representatives from research, oncology, radiotherapy, surgery, nursing, general practice, radiology, pathology, palliative care, allied health, and Consumer Advocate Representatives.
Consumer Advocate Representatives
The role of the Consumer Advocate Committee is to advocate for the views and needs of the lung cancer community throughout the planning process of the Consumer Forum and ALCC 2020. The representatives have worked toward ensuring:
- Patients and their family members can attend both events at a low cost.
- Patients and their family members will be given adequate support to interpret scientific data and engage effectively with clinicians and researchers.
- The views and needs of the lung cancer community will be represented in the scientific program.
- Researchers are encouraged to submit abstracts which involve patients in research.
- Consumer advocates will be invited to review abstracts based on consumer participation and relevance to the lung cancer community.
- Travel grants are available to allow interstate patients and their families to attend both events.
Hi I’m Lisa Briggs and I am excited to represent the lung cancer community from the ‘patient’ perspective. I have been living with lung cancer now for 5 years. I was diagnosed with Stage IV lung cancer at 32 years of age and, soon after giving birth to my 2nd child in 2014. At the time, I commenced a clinical trial, for 3 years, but after developing brain metastases, I changed treatments. Living with lung cancer in the early stage of my diagnosis was isolating and confronting. After becoming acutely aware of the challenges faced when receiving a lung cancer diagnosis, I began advocating passionately for Lung Cancer and the community it represents. My roles as a lung cancer advocate have included lobbying government for research funding and access to treatment, co-chairing the Lung Cancer Patient Advisory Group (LFA), leading the lung cancer consumer group for the Victorian Lung Cancer Summit, working with Cancer Australia, and helping set up and promoting support groups within Victoria amongst other things. I have also been an invited keynote speaker at various forums, conferences and schools across Australia and am co-author of the positive mental training book ‘Conquering Cancer. Develop Your Will to Live’, to help positively empower others living with lung cancer. I have also been nominated for the 2020 VIC Local Hero, Australian of the Year Award. My aim is to connect, support and improve the visibility of lung cancer in Australia and help challenge the diverse inequities we face as a community in order to help improve outcomes. I very much look forward to connecting with you at these events.
Hi I’m Tom Wood and I’m proud to be able to represent the lung cancer community from the ‘family/carer’ perspective. In 2016 my Mum Kym was unexpectedly diagnosed with lung cancer (EGFR), which was a huge shock. I soon became aware of the massive inequities that exist for lung cancer in Australia, including in services, support and research. I have tried to advocate by contributing to Facebook support groups, being a member of the Lung Foundation’s Lung Cancer Patient Advisory Group, and attending medical and scientific events, pushing for innovative and patient-friendly research and care. My aim is to help connect and share information with people in the lung cancer community, so they can feel supported and empowered, in turn increasing the pressure to improve the treatments available in Australia, and the way people and their families are treated and supported.